My MS Story

I have been doing exceptionally well as of late.   The problem with doing so well is that I have become uncharacteristically careless.   Now I tend not to think before I move.   Moving a little too fast, leaning a little too much or bending a little too far can cause significant catastrophes.   The cleanup from one of these calamities can be very time-consuming. The other day I was feeling especially good.   This positive day was not a reason for the alarms to go off and the bells to ring.   Instead, it should have reminded me to always be on the alert.   The flashbacks of my problematic past should encourage me to watch every move that I make cautiously. I rolled up next to my bed so that I could take my twenty-minute power nap.   Transferring to my bed from my wheelchair has never really been a problem.   The issue has always been when moving from my bed to my chariot.   This bed to chair transition is a challenge because of not having the extra height from shoes.   The lac

Just when I think that I am not going to have anything to blog about something new occurs.   A bright light has been shined on someone’s ignorance, imbecility , and inanity .   My faith in humanity has been knocked down several pegs.   This belief backslide of my faith was caused by the total lack of sympathy of society.   Lucky for me in my old age I have learned how to avoid confrontation in these situations.   At the fitness center where I swim there are three rooms specifically for changing.   These changing rooms are available for families or the disabled to use for pool preparation privacy.   In all actuality, anyone can use these three rooms as there is no bouncer at the door.   There are a variety of needs that cause the privacy need of these rooms.   I sat patiently waiting as I ate a protein bar and talking to a friend.   A woman and her daughter came out of the dressing room as they gathered their belongings slowly.   She looked at the two empty rooms a

I have heard that some people think that MS is contagious like a virus.   This ignorant thought can cause people to avoid us.   Others believe that we have mental problems making them ignore us.   Some have thought multiple sclerosis is more than just an illness.   This lack of knowledge may encourage them to shun us. People can quickly put their foot in their mouths when interacting with people with disabilities.   This action is because they think that they know but they have no idea. This bad behavior is noticed if medical issues are visible like using a cane, walker, or wheelchair.   The humor comes in when they pretend that they know.   I heard it once said, “It is better to keep your mouth shut and appear stupid then open it and remove all doubt.” The other day I woke up on a swim day and something felt a little off.   I had a challenging start to the day, but I was not about to give in.   I was moving slower with a hint of weakness in my arms.   Thankfully I always