My MS Story

This is how multiple Sclerosis significantly impacts my daily life.   I will explain everything step by step starting from when I first open my eyes in the morning.   I have told you that I have Multiple Sclerosis and you may in fact personally know someone with MS.   This blog will give you a glimpse into how this disease affects my every move.   It may also give you a peek into the battle that your friend is dealing with as well.   You may not realize how something minor in your life is a significant concern in mine.   Most people take every step that they make for granted. The bedroom light comes on automatically at 6:44 in the morning.   I am a light sleeper, so this wakes me up yet at 6:45 my alarm goes off just in case.   My leg muscles need an extra few minutes to wake up, so it takes time to sit upright.   As I try to get up my legs stiffen like I was in a planking competition.   I must get them to the side of the bed and let gravity bend them towards the ground.   My

I am trying to get the courage to share the more difficult experiences of my early MS days.   Several times I wanted to put them down on paper to share these stories.   The problem was that it was too emotionally painful.   I look back on some of these situations, and I try to think logically.   I wonder what the difficulty was.   I contemplate the reasoning for my mental conflict.   I ponder the possibility of being judged for my actions.   Not for doing anything wrong per se, but that I just did not handle the situations “correctly.”   Although what does dealing with them correctly mean? I look at these predicaments from the outside.   Someone could say that the answers were so simple.   I might be told that a smart person would have seen it.   The intense fear that someone might say that I am making mountains out of molehills petrifies me.   The emotional struggle should merely be swept under the rug and ignored, they would say.   They might say that these should not be debi

Temperature and MS have a paradoxical relationship.   The form of MS that one has determines the severity of any symptoms.   These physical alerts can cause exacerbations that significantly challenge life.   These manifestations can be uncomplicated like making a person slightly winded.   In extreme cases, it can put a person out of commission for several days.   I say temperature because MSers can be impacted by either hot or cold.   However, most of the MS community is challenged by heat. Multiple Sclerosis is the gift that keeps on taking.   It is complicated for the newly diagnosed to plan for the effects of MS.   The reasoning for this lack of preparation ability is twofold.   First, the Multiple Sclerosis symptoms vary from person to person and day to day.   This means that no one can genuinely warn a new MS patient of what is to come.   The second is that it would not compute if an individual were advised.   This is because a person’s abilities before MS are incredibly d

I planned on doing a blog on “The Spoon Theory” and its life lessons.   It is an excellent read for the unwell or for those who want to learn about people who are sick.   Be aware that I have unexpectedly rushed this blog and now it is disorganized.   That is what happens when you change ideas at the last minute.   I still hope that you are able to enjoy and learn something from it.    I also encourage you to read “The Spoon Theory.” When I was new to my Multiple Sclerosis life, someone asked me to read a story called “The Spoon Theory.”   This story talks about a girl with Lupus explaining her life with this disease to her friend.   I soon learned how this story is similar to MS and other medical conditions as well.   It showed how she must conserve her “spoons.”   The spoons represent the energy that the sick have on a daily basis.   I say the sick in general because each medical condition is both the same and different.   We have to plan out our day cautiously thinking and c