My MS Story

I received my very first custom fit light wheelchair in early 2012.   My family in Florida had been asking me to visit with them since 2010.   Their beseeching was for me to stay with them for two months.   I decided to accept this proposition and planned to visit in the winter of 2013- 2014.   Since a wheelchair made me more mobile, this trip would be manageable.   This visit was going to be over a year away, so I knew that I had time to plan for everything carefully.   For your knowledge life in a chair also involves geometry and spatial reasoning.   The importance of this information will become apparent later in the story. Anyone that knows me can probably tell you that I am a scheduler and a planner.   This invitation to stay with family in Florida was going to be for eight weeks.   I had not traveled for nearly two decades, and now I was going to fly with a medical condition.   A trip like this with multiple sclerosis was going to be a gargantuan undertaking.   It was not

The blog for this week has been canceled due to a blogging position that has been offered to me.   We still need to nail down the details of everything that they require from me.   Honestly, I did not think that I was good enough as a blogger for a magazine.   However, my self-deprecating opinion has since been corrected several times.   They especially enjoyed my MS blog entries as this will be for a national MS magazine.   I will still be posting entries here on my personal blog because this job will not be a full-time position.   This is my understanding although I do not know any of this for a fact yet.   The periodic publication employees will pick a topic and pass it out to all of us bloggers.   At that point, we writers will type something out for the magazine staff to peruse.   The team then picks some of their favorite entries and adds them to the upcoming issue.   I do not know any of the blog details yet like how long we will have to write these words.   It typically

Many people over the years have asked me if I have thought about driving a car.   They eagerly remind me how hand controls have made this possible for many individuals.   My response is that my hand-eye coordination has always been lackluster.   I explain that I am really good at Grand Theft Auto.   Then I clarify that I am really good at crashing the cars on Grand Theft Auto.   I guess that crashing vehicles in real life would be frowned upon. However, I have recently been contemplating copious cavalcades.   I could be making daily trips here and there continuing to master my self-reliance.   The goal is to not burden me with needing to count on others.   I currently feel enslaved by the absolute dependence on people and not myself.   The deprivation of freedom that I feel from the shackles of dependency aggravates me to no end.   At this point, I need to start looking at all of the options before me.   I need to see what I can be doing differently. Shortly after my diagno

I found true beauty in the love of my life.   She has grace and elegance like none before her.   This glamorous Venus allows me to be myself while helping to keep my independence.   She has a poetic symmetry that allows for smooth Fred Astaire like movements.   However, to receive this gift from the heavens was a difficult battle.   To attain my alluring lovely, I needed true fortitude and strong tenacity.   In the beginning, the dissension that I received was incredibly disheartening.   Allow me to tell you the story of getting my fantastically fitted and life-altering wheelchair.   There are many different styles of these transport mechanisms including both power and manual.   These wheeled apparatuses are more than just a way to get from point A to point B.   They are miraculous machines that allow riders to be the indomitable warrior that they desire.   Creature comforts and usability of these magical marvels is the primary mission.   If an ambulatory person has an uncomfor