My MS Story

I was reading the backstories of some of my fellow MSers and was taken aback.   I noticed that before they began their multiple sclerosis medications, they had exacerbations.   These flare-ups were sometimes frequent, and often they were extremely debilitating.   When these individuals started the MS medications occasionally, the exacerbations nearly stopped.   I am not sure how or why things have been going this positively for me.   This is the follow up to my personal multiple sclerosis story.   I always had minor stumbles, falls and occasionally an exacerbation that required steroids.   In the beginning, I tried several of the multiple sclerosis A-B-C drugs.   I took these disease-modifying meds for just over two years.   During that time I had significant deterioration and no success in slowing the disease progression. I began to do extensive research to find everything out there about multiple sclerosis.   I was looking for anything that had been positively impactful o

Someone recently told me that I was an inspiration to them.   I have been told that before, but I do not feel like an inspiration.   This person explained to me that I have a great attitude.   They told me that my jovial disposition   despite the numerous adversities that have been in my path is excellent.   Apparently, they did not read my untold MS story blog post.   Life has not always been rainbows and butterflies for me especially when dealing with my MS.   To be clear, I do not feel like an inspirational person.   These compliments tell me that the definition of inspiration might be nebulous.   Maybe the meaning of an inspirational person is not what I think that it is.   The following stories tell the tales of those who I believe are inspirational individuals indeed. There is a soldier named Travis Mills.   He came back from the Iraq war after an IED explosion incident.   He was the fourth quadruple amputee that came back from this war.   Everyone would have unde

I have been pondering periodic pithy peregrinations as of late.   Before I embark on one of these journeys, unexpected arrangements must be made.   For a person not living with multiple sclerosis preparations for a trip is an effortless endeavor.   When making the same provisions for a MSer it is crucial to be meticulous.                                                                In 1910 Lieutenant General Baden-Powell started the Boy Scouts of America.   The motto that he used was “Be Prepared” yet it is not just the Boy Scouts who use this motto.   In this MS life that is full of uncertainty and ambiguity, we must be ready for anything.   Our every move must be considered and carefully thought out.   It is true that everyone would benefit from planning for an extended outing. However, the mismanagement of time for a Non-MS individual may cause a minor inconvenience. On the other hand, for a MSer time miscalculations can cause extremely adverse outcomes.   When I take

My follow-up appointment with my new civilian neurologist was changed.  I was scheduled to see the doctor that I started with.  However, my visit would now be with the nurse practitioner.  For the purpose of this blog and her anonymity, I will call her Doctor Pepper.  I have no issues with nurse practitioners I have a great one in my family.  I would just like to have professional medical consistency.  Multiple Sclerosis in of itself changes by the day and sometimes by the minute.  Because of this eonian evolution, I would like continuity on my medical team.  I would also love to get honesty from my medical crew.  I personally do not like confrontation.  It seemed silly to point out the inconsistencies in Dr. Pepper’s statement.  Doctor P told me that she had my new MRI but did not have the old scans to compare it to.  I explained to the doc that my last scan was done at a hospital in her medical system in 2005.  This meant that these old scans should be made available upon her request